Events - Rare Diseases - Medical Research - Health - Research & Innovation

August 29, 2013 – 01:54
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Third workshop of the International Rare Diseases Research Consortium (IRDiRC)

Montreal, Canada, 08-09 October 2011

The third workshop dedicated to the International Rare Diseases Research Consortium (IRDiRC) was held in Montreal, Canada on October 8-9, 2011, Following two previous workshops in Reykjavik, Iceland and Bethesda, USA . The workshop was hosted by the Canadian Institutes for Health Research and Genome Canada and co-Organised with the European Commission and the U.S. National Institutes of Health.

The Montreal meeting Gathered around 100 Participants Representing public and private funding organizations, scientists, regulators, industry and patient groups. It focused on continuous efforts to develop common scientific and policy frameworks to guide the activities of the Participating IRDiRC members.

Already Several activities are ongoing or planned and were showcased at the meeting. The establishment of an effective and flexible governance structure was Also discussed. It was IRDiRC Decided to hold an Interim Executive Committee meeting in Belgium, Brussels in January 2012. One of the meeting's main Objectives will be to appoint members to IRDiRC's Scientific Committees. Nominations to These Committees will be accepted from November until the beginning of December 2011.

Following please find links to the documents:

  • Workshop agenda
  • List of Meeting Participants


  • IRDiRC Objectives and Aims of the workshop (Stephen Groft, National Institutes of Health (U.S.) (110KB)
  • State of the art IRDiRC (Ruxandra Draghia-Akli, Director, Health Directorate, DG Research and Innovation, European Commission) (11.36MB)
  • IRDiRC governance and next steps (Ruxandra Draghia-Akli, Director, Health Directorate, DG Research and Innovation, European Commission)

Roundtable presentations: - Update of current and planned actions to IRDiRC contribution committed by funding agencies

- Scientific Advances Contributing to IRDiRC Objectives

  • Kym Boycott - University of Ottawa (Canada) (6.10MB)
  • Lu Wang - National Human Genome Research Institute (U.S.) (775KB)
  • Shawn Liu - Beijing Genomics Institute (China) (26.76MB)

- International Policy Aspects

  • Bartha Knoppers - McGill University (12.40MB)
  • Jaroslav Waligora - European Commission (744KB)

- Regulatory Challenges in the International Context

  • Jordi Llinares - European Medicines Agency (10.99MB)
  • Anne Pariser - Food and Drug Administration (U.S.) (2.52MB)
  • Debra Lewis - Food and Drug Administration (U.S.) (11.72MB)

- Industry Challenges in the International Context

  • Richard Bergstrom - European Federation of Pharmaceutical Industries and Associations (2.36MB)
  • Miriam Gargesi - European Diagnostics Manufacturers Association (1.54MB)
  • Clarence Young, Novartis Pharma (12.67MB)

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More resources

2008-09-16 14:07:15 by ticat

My friend had a hip replacement in Costa Rica and couldn't be happier with the results. She worked with an agent at who took care of all of the arrangements at no extra cost. The hospital is managed by a US company and she had a US-trained doctor and English-speaking nurses. I saw pictures of the hospital and room, and they were nicer than anything in my town. Do your research and use an agent... they know all the best places to go. I read that over a million people are doing this "medical tourism" thing. My friend would not have been able to afford the surgery in the U.S.


2012-05-31 16:55:04 by bmw_grrl

You are right about socialized medicine in that it isn't always the best medicine. Whether we like it or not, the reason a lot of these new medical discoveries are achieved is because of money.
The U.S. leads the world in many areas of medicine.We would be even further along if the religious freaks hadn't put restrictions on embryonic stem cell research.


2008-02-05 10:01:11 by deliverydoc

American University of the Caribbean, St. Maarten, N.A.
If you are near graduation, you should have some placed lined up by now.
My advice, go to a U.S. medical school. Much easier. If you can't get in, only then apply foreign. Stick with St. George's, Ross, AUC, St. Matthew's. This is only my opinion and is up for as much debate as Chicago vs. New York pizza. (Chicago wins). You would have to do lots of research and make you own decisions on this matter.
Nothing in medical school is any more difficult than that year of organic chem. In fact, most of the material is pretty straight forward, just voluminus.
Best of luck.

Dr. Andrija Puharich

2010-11-20 00:30:10 by 58andfixed

Parapsychologist, Medical Researcher, and Inventor
an Army officer in the early 1950s.
During that time, he was in and out of Edgewood Arsenal Research Laboratories and Camp Detrick, meeting with various high-ranking officers and officials, primarily from the Pentagon, CIA, and Naval Intelligence.
The Edgewood Arsenal is currently officially called the Edgewood Area of Aberdeen Proving Ground. Puharich was a medical and parapsychological researcher, medical inventor and author, who is perhaps best known as the person who brought Israeli Uri Geller and Peter Hurkos to the United States for scientific investigation

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